Tom Cummins Stand brings accessibility to Shepparton events

By Djembe Archibald and Megan Fisher

Dec 25, 2024

Builders of the stand from Sib Weld, Ben Sibio and Paul Trevaskis, with Tom Cummins. Photo by Megan Fisher

Tom Cummins is a Shepparton local and has lived his entire life in the area.

Hold tight - we’re checking permissions before loading more content

But he is doing more than just living — he is leaving a legacy.

Mr Cummins is an active participant in the School Leaver Employment Supports program at Are-able, where he’s developing skills to pursue meaningful employment.

He was diagnosed with PURA syndrome, a rare genetic condition affecting mobility, and has made it his mission to advocate for accessibility and inclusion in the community.

With fewer than 600 people diagnosed globally, PURA syndrome affects multiple body systems.

Shepparton Rotary’s Ian Tagg, Zoe Kolovas, 5, Richard Lilley, Lorraine Hausfeld and Patsy Lansdown. Photo by Megan Fisher

While he enjoyed outdoor activities such as sit-skiing and horse riding in his youth, scoliosis and subsequent back surgery limited his physical activities.

His personal experiences highlighted a need for better accessibility at outdoor events, where obstructed views often left him feeling excluded.

Mr Cummins’ vision for an accessible viewing platform began during his participation in the Music, Arts, and Culture Committee of the Greater Shepparton City Council.

During a MACC meeting, he proposed hiring an elevated viewing platform for an event, but budget constraints prevented the idea from moving forward.

Are-Able staff Hayley Spitaleri and Stephanie Caunter. Photo by Megan Fisher

Undeterred, he turned this dream into a community-driven project, aiming to create a permanent accessible solution for Shepparton’s events.

Over two years, Mr Cummins worked tirelessly to advocate for accessibility and inclusivity through his SLES sessions.

Features of the Tom Cummins Stand

Elevated platform: Provides an unobstructed view of events.
Accessibility-driven design: Ramps, handrails and a portable pathway ensure safe and easy access.
Enhanced amenities: Includes a marquee, portable chairs and storage space.
Visibility: The stand features signage to share Tom’s story and acknowledge sponsors.
Safety features: Emergency ramp and electric motorised jockey wheel for easy setup.

Through advocacy and fundraising, $74,301.55 was raised to build the Tom Cummins Stand.

Managed by the council events department, the stand will be available for hire with minimal costs to ensure accessibility remains a priority.